Myasthenia gravis

The MGFA registry enables MG patients to safely, securely, and confidentially contribute their health and symptom data to help researchers design and drive ...

Research leveraging the registry will be shared with participants, so that they stay actively involved throughout the process and see how their contribution of data benefits the community. The MGFA registry enables MG patients to safely, securely, and confidentially contribute their health and symptom data to help researchers design and drive research studies and clinical trials for making MG discoveries and finding better treatments to improve MG patient outcomes. "Patients from around the world require data privacy, and now they can safely and securely share their data to help research sponsors make MG discoveries that could lead to better outcomes and treatments. The MGFA registry is a powerful, real-world data source that will enable research and clinical trials with access to recruitment and direct patient insights. "We see a future where patients are empowered to carry their own end-to-end health care information to obtain more effective treatments, better manage a disease, be healthier, or actively equip their circle of care to assist them," said Gabriele Brambilla, chief executive officer of Alira Health. Alira Health has provided new, more efficient methods for patients to submit their data via a mobile phone application called Health Storylines™, as well as analytical support to unlock insights from the registry.